Diagnosis is the first step toward treatment. Team Lydia is dedicated to quickly diagnosing genetic diseases so that patients and their families can begin treatment as soon as possible. To diagnose many genetic diseases, it is necessary to sequence a child's entire genome. That can take 3-6 months using traditional techniques. The wait delays treatment and is excruciating for patients and families alike who continue to suffer without knowing why. Team Lydia is dedicated to funding rapid genome sequencing that takes just days. Patients and their families receive diagnoses while hospitalized and can immediately discuss that diagnosis with their doctor. They can discuss treatment options, and their prognosis, and begin planning for the future.
I am doing this ride for Lydia- in her honor. I was privy to many great stories from her parents of her, always with the most contagious smile. Some of those photos are shared above. Lydia wasn't handed an easy life but made the most of it. That says a lot given what felt like a constant struggle. In the spirit of her and all the youngsters that deserve more, please consider donating to Children's Hospital and directly supporting funding for rapid genome sequencing.