
I'm riding with my 22 year old son Henry who courageously manages his EB. We rode a modified Courage Classic last year and are so looking forward to a full weekend of riding, connecting, supporting Children's Hospital this year.
Henry will be starting his senior year of college in August. After graduating May 2023 he plans to go to law school to become a disability policy lawyer.
His determination to live a full life despite the challenges of EB sets a high bar which inspires me every day.
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