I'm riding for Maisy! I want to share a little more about Maisy from her parents:
"When I was 13 weeks pregnant, we learned the scary news that our baby’s body was overwhelmed with fluid (hydrops) that would eventually overcome her heart and lungs. We kept fighting alongside her, and against all odds, the fluid in her body subsided. Because of these early indicators, we discovered early on that our daughter Maisy has a genetic disorder called Turner Syndrome.
Like many other Turner Syndrome “butterflies” (the butterfly is the symbol of the TS community), Maisy has endured several medical complexities since birth — heart defects among them.
We started visiting Children’s Hospital Colorado shortly after the initial TS diagnosis, where the skilled team detected a coarctation of the aorta while Maisy was still in utero. Maisy was born at CHCO, went straight to the Cardiac Intensive Care Unit (where she had a dedicated nurse watching over her 24/7), underwent open heart surgery to repair a hypoplastic aortic arch at 6 days old, and spent a few more weeks in the cardiac recovery unit. The cardiac team at CHCO saved Maisy’s life — from prenatal diagnosis to surgery to recovery to continued cardiology care today — and we couldn’t be more thankful.
Maisy is our miracle, joy, and bright light and we get to enjoy life with her every day because of the amazing team at CHCO who have become like a big family to us. Thank you for supporting CHCO and the Heart Institute so that other families can experience the same expert care that has been game changing for Maisy."