I ride in memory of my daughter Lydia. And I ride so that other kids facing rare genetic diseases can receive a diagnosis as quickly as possible.
Diagnosis is the first step toward treatment. Team Lydia is dedicated to quickly diagnosing genetic diseases so that patients and their families can begin treatment as soon as possible. To diagnose many genetic diseases, it is necessary to sequence a child's entire genome. That can take 3-6 months using traditional techniques. The wait delays treatment and is excruciating for patients and families alike who continue to suffer without knowing why. Team Lydia is dedicated to funding rapid genome sequencing that takes just days. Patients and their families receive diagnoses while hospitalized and can immediately discuss that diagnosis with their doctor. They can discuss treatment options, and their prognosis, and begin planning for the future.