Honoring Camila’s Legacy
In 2018, my wife Eva and I welcomed our firstborn, Camila, into the world. Her arrival brought an unexpected diagnosis that neither of us fully understood at the time: DiGeorge Syndrome (22q11.2 deletion syndrome). Camila was also born with a complex heart condition known as Tetralogy of Fallot with Pulmonary Atresia and MAPCAs.
Her condition was rare, and for five months, Camila fought for her life alongside us in the CICU at the Children’s Hospital of Colorado. Even as a tiny infant, she displayed a sense of strength and endurance that was well beyond her age. Tragically, just days before her scheduled open-heart and lung repair surgery, Camila passed away.
Losing Camila changed our lives forever. Today, Eva and I are dedicated to honoring her memory by supporting other parents who have walked the difficult path of raising medically complex children. We strive to raise awareness about the vital importance of patient advocacy and to provide a hand to hold for bereaved parents navigating their own journeys of grief.
While Camila’s journey on this earth ended too soon, her legacy continues to climb; please join us in honoring her strength by donating today to support the brave families still fighting their uphill battles at Children's Hospital Colorado
Thank you
Rei and Eva
