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I ride for my son, Cooper Deming, who was 12 when he died on May 9, 2017.
A deadly brain tumor — DIPG — for which there is no cure or even effective treatment, came out of nowhere and took the life of my beautiful, kind oldest son. When you are sitting in a hospital with your child and realize there's nothing that doctors can do, it is unmooring in a way that is impossible to describe. You think medicine can fix anything, especially in a strong, healthy kid.
Cooper endured 11 months of living with this horrible tumor. It started with double vision. Then balance issues, nausea, difficulty swallowing, inability to walk, or to even hold his head up. Unimaginable suffering.
This year, every dollar raised by Climb for Coop goes directly to DIPG research at Children's Hospital Colorado, and a generous private donor will match every dollar raised, establishing the new Cooper Deming DIPG Research Fund.
This is the most exciting moment in DIPG research ever. Technology now exists to target DIPG with personalized, precision treatments that weren't possible before — CAR T-cell treatments that are moving from the lab toward the clinic. There has never been a better time to give.
