I'm excited to be riding in my 8th Courage Classic - again with Team Metamorphosis, the only team dedicated to raising awareness and funds to transform the lives of individuals with epidermolsys bullosa (EB). With our partners at The Butterfly Children Fund, we intend to raise at least $50,000 to support EB care and research at Children's Hospital Colorado.*
EB is a group of rare genetic disorders characterized by fragile skin. Children born with EB suffer from a lifetime of blisters and open wounds. Individuals with the most severe forms of EB develop other health problems, such as chronic pain and limited mobility. The EB clinic at Children's Hospital Colorado is the only EB center of excellence in the Rocky Mountain US, providing care for over 100 patients with EB. Our team members help patients optimize their health and quality of life through innovative and collaborative care. In addition, we are one of only a few EB centers in the US offering clinical trials of emerging treatments for EB.
Throughout my career, my patients with EB and their families have taught me invaluable lessons about COURAGE and LIVING COURAGEOUSLY. By riding in the Courage Classic, I'm honoring my patients and their families. Your generous support allows Children's Hospital Colorado to continue its mission of supporting positive outcomes and healthier futures for children, including those with EB.
*If we do not reach that $50,000 threshold, our fundraising will support unrestricted funding for Children's Hospital Colorado's greatest needs.
