I am supporting the Courage Classic for Kids like Jordy.
Jordy was born in November 2014 with a rare chromosomal deletion disorder known as "Wolf-Hirschhorn Syndrome". She was diagnosed at birth and parents were told she would never walk, talk, eat (by mouth), see/hear, and have severe developmental delays. They were told to prepare for her to not live past the age of 2.
Today - Jordy is a strong, funny, determined, loving, smart 10 year old girl who is the absolute joy of my life. She loves school, swims, rides horses, bikes, laughs (nonstop), and has so much to say (via her talker). I personally met Jordy and her wonderful family about 5 years ago at our local church through a special needs ministry I helped start. I feel so blessed that I am able to be her home-health nurse alongside working in the PICU with the absolute best co-workers.
I am riding in support for kids like Jordy who need all the technology, equipment, research, and care that Children's Hospital has provided to help them surpass all odds.