I am thrilled to be riding in my 7th Courage Classic - again with Team Metamorphosis, the only team dedicated to raising awareness and funds to improve the lives of individuals with epidermolsys bullosa (EB). With our partners from The Butterfly Children Fund, we intend to raise at least $50,000 to support EB care and research at Children's Hospital Colorado.*
EB is a group of uncommon genetic disorders characterized by fragile skin. Children born with EB suffer from a lifetime of blisters and open wounds. Individuals with the worst forms of EB develop other health problems, including chronic pain and limited mobility. The EB clinic at Children's Hospital Colorado is the only EB center in the Rocky Mountain US, providing care for over 100 patients with this rare disorder. Our EB team members help patients live their best lives, by optimizing their health and quality of life, and by researching better treatments. We are one of only a few centers in the US offering clinical trials of emerging treatments for EB.
Throughout my career, my patients with EB and their families have taught me invaluable lessons about COURAGE and LIVING COURAGEOUSLY. By riding in the Courage Classic, I'm honoring my patients and their families. Your generous support allows Children's Hospital Colorado to continue its mission of supporting positive outcomes and healthier futures for children, including those with EB.
*If we do not reach that $50,000 threshold, our fundraising will support unrestricted funding for Children's Hospital Colorado's greatest needs.
