I am supporting the Courage Classic for patients like Emma Rae.
Emma Rae Ty Patrick was born on September 20, 2024 at 37 weeks gestation at 4 lbs. 13 oz. She was diagnosed with HLHS at our 20 week anatomy scan during pregnancy. She had her first surgery, the Norwood, at 4 days old. She spent a total of 6 weeks at Children’s Hospital. She recovered from her surgery like a true warrior but had to return just before Christmas to get an NG tube placed and again in January 2025 for a Pre-Surgery Cath procedure and a special stent placement. She was the first baby at Children’s Hospital Colorado to receive the Renata Minima Stent, a special type that grows with her. She is pioneering the way for babies like herself to receive life saving technology that doesn’t require additional chest surgeries.
Emma Rae also had a second Major Heart Surgery in March 2025 called the Glenn procedure. She was released 5 days after surgery with amazing progress that time as well. She went home on oxygen for a month. Recently, she had a heart scare and was flown to Denver from Colorado Springs for an emergency procedure due to her outgrowing her new stent. It was a simple fix, thanks to this type of stent. However, due to her heart being under distress for so long, she is dealing with heart failure currently. She has been placed on new medications to help ease the workload on her heart. She will need her 3rd surgery between 2-3 years of life. We are praying for her heart to get stronger so she can successfully go through her third major heart surgery. To this day she has gone through so much in just 8 months of life-
14 EKGs
40 X-rays
3 CTs
27 Echocardiograms
15 Outpatient appointments
2 Cardiac Surgeries
41 Dressing Removal, Changes, Cleaning
4 Catheters
16+ NG tube placement
12 Catheter tube, Chest tubes, Chest wire placement and removal
6 Blood transfusions
2 Swallow studies
4 times Anesthesia & Ventilator
5 Hospital Discharge days
20 IV starts
80 Blood Draws
7 Shots
3 ICU admissions
11 Trips to Denver for appointments or admission since birth
5 Hospital Admissions
2 times Sternum wires & sutures, and so much more.
She has impacted so many lives in her young little life already. She has a sweet, contagious smile since the day she was born.