For over 20 years we have traveled from Utah to the Childrens hospital of Colorado with our childrens to receive care at the Epidermolysis Bullosa Specialty Clinic. This clinic has been our life line for creating the best possible quality of life for our 4 kids with EB. There is no part of life that EB does not impact negatively. Our kids suffer everyday from blisters, lesions and the baths that we use to manage their care. The EB clinic has been there every step of the way as we try to navigate this rare and devastating disorder.