Sofia, Children's Hospital Colorado patient ambassador
I ride in memory of Sweet Rory Belle, my friend's daughter who died at 17 months old. She had a rare genetic disorder, NARS1, and was treated by multiple teams at Children's.
Rory loved her swing, walks in her stroller, music, her carrier with her mom, and her brother, Charlie.
Donations will be directed to the Palliative Care Team at Children's Hospital Colorado. This team provides holistic care to children and their families living with chronic, life-threatening or life- limiting medical conditions. Their primary focus is to optimize quality of life by defining goals of medical care.
For more information on Rory and NARS1, visit
therorybellefoundation.org
